A Cumbernauld mum discovered her baby’s rare condition after noticing her “floppy” hands and feet.

Katie Rollo, 32, is unsure if her 10-month-old daughter will ever be able to walk after being diagnosed with a rare muscle condition.

Miley was born with Ullrich congenital muscular dystrophy which doctors noticed after she struggled to move her joints.

Glasgow Times: Brave Miley is her mum's inspiration Brave Miley is her mum's inspiration (Image: Sourced)

The disorder means that she has a curvature on her spine and suffers from respiratory muscle weakness, causing her to breathe faster than usual.

This means she may need night-time ventilation in the future but for now undergoes regular sleep studies to monitor her breathing.

Miley has also been fitted with a spinal brace and more recently a nasogastric (Ng) tube to help her gain weight.

Glasgow Times: Miley has a very rare condition Miley has a very rare condition (Image: Sourced)

Katie said: “Miley was just four months old when genetic testing confirmed that she has Ullrich congenital muscular dystrophy.

“Christopher and I didn’t know what this meant for our daughter, but after looking into the condition, we quickly understood that due to her muscle weakness, Miley is unlikely to ever walk, or if she does, we’re unsure how long for.

“She is under the care of the neuromuscular team, but we’ve met with lots of different specialist teams – spinal, respiratory, physio, and everyone has been so supportive.”

Glasgow Times: Best friends Katie Rollo, 32, and Amy Stevens, 32 Best friends Katie Rollo, 32, and Amy Stevens, 32 (Image: Sourced)

Now Katie is teaming up with her best friend Amy Stevens, 32, to take on “Miley’s Magical March” and walk 22.6 miles.

On Sunday, April 28 the pals will travel from Glasgow Green to Loch Lomond for this year's Glasgow Kiltwalk and fundraise for Muscular Dystrophy UK.

The charity supports more than 110,000 people in the UK living with muscle wasting and weakening conditions.

Katie said: “Miley is such a strong, smiley wee girl and just seems to take everything in her stride.

“I’m so proud of her and the way she adapts to all the changes that come her way.

“I’m doing this Kiltwalk challenge for her. She is my motivation and I want to do something to help raise awareness of muscle wasting conditions.

“Since Miley was diagnosed, everyone we’ve met and spoken to about her condition has been so helpful.

“We still have a big journey ahead of us but it’s nice to know that we’re not alone, and we want to give something back so that Muscular Dystrophy UK can be there for other families like ours.”

Explaining why it’s important to her to take on this challenge and walk alongside her best friend, Amy Stevens said: “I really didn’t know much about muscular dystrophy before Miley was born and diagnosed at a very young age.

“But now I do, and Muscular Dystrophy UK have been absolutely amazing.

"I know that my bestie and her family don’t have a smooth road ahead, but with the right type of support it’s going to be a lot easier, and I want to do everything I can so that they, and other families, can continue to get the help and support they need.”